Well, what an eventful last couple of days we have had around here!!! For those of you that know we got sent to Children's Hospital in Minneapolis on Thursday, sorry I haven't updated this sooner with this information.
On Thursday, Lucas had his one week checkup. Everything was fine when we saw his pediatrician, but he had to have some blood work done also. That is when things started to get a little "hairy".
When Lucas left the hospital, his billirubin was 9 and his platelet level was at 90,000 (they like them to be around 120,000). But with Denise having low platelets, the level he was sent home with was more than acceptable and had actually rose since birth. Well, after two rounds of blood tests (the second just to confirm the numbers), his platelets had dropped down to 10,000 and his billirubin had risen to 17 (jaundice). Well, we were sent to get a "billi-blanket" for him while the pediatrician called Children's to see what should be done with that low of a platelet count. They basically told us we had to get down there that day. They were concerned with blood that thin and unable to clot that Lucas could have a bleed somewhere and we would not even know it. So, after quickly packing a few things, we were off to Minneapolis to see if we could get to the bottom of this.
After a stressful ride down there (massive rain storms with several spin outs on the Interstate), we made it safely and made our way to the Specialty Clinics. There, we were seen by a team of three hematologists and they did their blood draws. After some consultation, we were then admitted into the hospital where Lucas would receive an IVIG treatment (IV Immune Globulin).
Lucas has preliminarily been diagnosed with ITP, or Immune (idiopathic) thrombocytopenic purpura. What that means is that he has an antibody that is attacking his platelets, causing his levels to drop. He more than likely picked this up from Denise during pregnancy, and we are not sure how she got it. It seems to be something that just shows up and no one really knows why. By giving Lucas IVIG, they are hoping to confuse the antibodies and get them to attack each other until his body gets strong enough to fight them off on his own.
So, after a fairly sleepless Thursday night at Children's Hospital, they did some more blood tests on Lucas. His billirubin had dropped to 12.9 and his platelets were up to 45,000. They were surprised that his platelets had risen that much in that short of time after the IVIG, as the peak is usually not realized until day three after treatment. So they were more than happy to discharge us and we were more than happy to go.
Tomorrow (Monday), he has a follow up appointment at the clinic in Alexandria where they will do another blood draw and check his platelets and billirubin. The results will be sent to Children's and they will coordinate with Alexandria on treatment/follow ups.
So, what does ITP mean for Lucas? Well, we don't know as he is only a week old. Best case scenario, his body fights it off and there will be nothing for us to worry about. Worst case scenario, he will have the condition his whole life, which isn't a bad thing. It just means we will have to monitor his platelet levels and watch for any abnormal bruising. But for the most part, he will have a normal life.
Denise will have an appointment with a hematologist on Thursday to try and see what the reason is for her low platelets. More than likely her diagnosis will be the same thing. If it is, it is something you can live a fairly normal life with. We actually had a nurse at Children's that has had it for 23 years. She got it in her third pregnancy. She said she gets tired from time to time and has to watch what medicines she takes, but otherwise, she hasn't really had to change her life style. But, if it is worst case scenario, they would have to remove Denise's spleen. But that is the extreme and hardly happens.
And now, a few pictures for you!
Here is what was waiting for Denise and Lucas when they came home from the hospital!


Troy, Libby and Lucas, all asleep in the chair one night! That is Libby's teddy bear, not daddy's!

And this one is from today, Libby and Lucas sharing daddy's lap during the Vikings game.

That is about all from here. We will update more as we know more! Thanks for your thoughts and prayers everyone!
Troy, Denise, Libby and Lucas